Friday, July 24, 2015

Lhermitte's Sign

There's power in a name. Today, two years later,  I was relieved to know the name of that sudden and seconds-lasting electrical shock I felt in my neck, limb and spine during chemo because it makes me feel more common and less strange.

When I was going through chemo, I often felt Lhermitte's (pronounced like "lair meets") sign. I now know that it occurs with high dose chemo which is used to kill cancer. 

Today, I feel this once in a while. I wonder if it's left over results? I'll have to ask my doctor. 

Wikipedia:

Other links:



Friday, June 12, 2015

Supplements, Star Wars and More

I was reflecting on chemotherapy this morning after a friend asked me for advice for her friend who is going through it now. Everyone's battle is so unique -- different paths for each of us. No two cancers are the same, even within the same individual. This post is about my path but maybe even 1 thing might help others. 

When I was told that I would be going through chemotherapy, I welcomed any advise my oncologist had to help me get through it. For instance, he gave me a spreadsheet that had just a few items for me to record throughout the sessions. In hindsight, memory does get challenged so checklists aides the attempt to recall information. In any case, the starter items were steroids for 2 days (1 the day before to prep the veins, 1 after to help pump the chemo throughout), Claritin daily to help with bone pain, and a minimum of 64 ounces of water daily. 

Other problems such as constipation, headaches, nausea, insomnia were things I also wanted to be prepared for so I looked for solutions to add to my spreadsheet. 

And then I thought of the job of chemotherapy: to kill cells. Ideally, kill the bad cells. I wanted to help my body not kill my good cells, or at least I wanted to help keep and or repair my good cells. Ultimately, this would help me feel better and help me get through the day in a way that would speed  the treatment part while also slowing down the savory moments as a mom with a young child. At least that was my hope. 

So, I researched like crazy and also got advice from friends and chemo mates along the way. Rest was the biggest advice. My body would be going through a lot so recovery through rest would help a ton. This advice brought up memories post childbirth. I remember reading how important resting would be and how pushing past naps would hurt. Makes sense. Chemically my body was not the same. So rest, eliminating chemicals that would make me feel worse (like sugar and coffee) would be a part of my plan. Also a part of my plan would include exercise since chemically that aided the good stuff. Chemotherapy also meant another time of mass chemical imbalance with needed solutions.

After researching and adding to the spreadsheet, I ran it by my oncologist who gave me a thumbs up. This is what I came up with and followed throughout chemo along with healthy eating (during chemo, no white or wheat flour, sugar, dairy, legumes; after chemo I shot for 80%) along with juicing carrots and celery  or other green vegetables daily. 


It was hard, but I ran a walking pace daily, napped daily, slowed down whenever I needed. There were days when I felt like I got kicked in my spine. But there were also days I got playing at the park with my son. I do feel like helping the good body chemicals was a part of these moments for me.

The next chemical change came after chemo: tamoxifen. This is another battle which I'm constantly learning to get through. It can make me feel down, physically and emotionally. But I find that when I add the following to my days, I'm so much better:

1. pharma gaba chewable by Natural Factors, 2-3 daily (good neurotransmitter brain help)
2. Calcium and magnesium in a 2:1 ratio pill (bone pain relief)
3. Magnesium serene  powder by Source Naturals nightly (good for bones and neurotransmitters that help many other processes in the body)
4. suntheanine (increases alpha brain waves that makes you alert yet calm)
5. More fluids
6. More rest
7. Daily exercise (a walk, a run, weights, or swim. Any of these daily)
8.  Tai Chi when I'm feeling like I can't sleep or I'm overwhelmed)

In hindsight regardless in my life where I've been challenged chemically like puberty, college, childbirth, chemo, tamoxifen, or when I've od'd on sugar or caffeine or other preservatives in goods -- it's made me feel off in small or exponentially large ways. I've been rewatching Star Wars episodes so here's a current analogy: these toxins of the dark side were given a good battle by the rebels of the Jedi side who fought with light sabers that included: supplements, foods that don't add to inflammation, and movement solutions. These helped fight the bad chemical invader empire. It's not the whole battle, but nevertheless a part of it.

These were my thoughts this morning. Hoping these help anyone out there with any chemical battle. It's always harder when you're in it. Hang in there! Sending you doses of love, the best supplement!

And, May the Force be with you!


Tuesday, February 24, 2015

Exercise Bras post implants



I just celebrated my two year mastectomy mark and I'm currently 8 weeks post reconstruction recovery in which two silicon implants were placed behind my pectoralis muscle.

At 6 weeks post recovery I was given the green light to run -- as long as I wore a supportive exercise bra. My surgeon recommended Nike. I wanted to check bras out by Nike as well as others without spending an arm and a leg on 'attempts' at finding a good fit since the dressing room doesn't provide all the info I needed. Will it sag in the front or back after 30 minutes? Will it make me chafe? Will it become annoyingly tight or loose with time?

So instead of paying $50-$60 per bra 'attempt', I went to ebay (if you don't have an account, it's easy!)  bid on 10 different bras that typically are in the $50-$60 range - and now have some good data on what makes my post surgical boobs feel light and supported without spending a fortune. Some are new never worn, some still have tags, some are previously loved. Some can be purchased outright without bidding war. 

In case you're new to ebay, one strategy I use when 'bidding' versus outright buying is to click on the 'watch' link of each item I like. I narrow down the ones I will bid on. I place my initial bid which is the asking price bid. I then wait. If I'm willing to bid again, I place another bid in the last hour or even last minute with a max price I'm willing to pay.

By far, my favorites are bras made by Moving Comfort and Under Armour. Each of these companies have many models -- I especially love the front zipper ones and the ones with clasps on the back to easily get in and out of while also getting support.

I love these so much that I'm getting some Moving Comfort and Under Armour for my 73 year old mom who is now getting into yoga. 

Great small victories which I hope helps same some money for others out there ;)


Post data:
Two thumbs up for Moving Comfort from my mom. I sent her the Fiona and the Jubralee. She loves her Fiona and now prefers these bras for daily regular use. This makes me happy!

I also found this link below. Enjoy!



Tuesday, January 20, 2015

Chemo Burn 2 years ago

Just took this picture and wanted to post it before time escapes me. This is for my cancer buddy out there who posted a question regarding chemo burn. The picture on this post is an example of how a chemo burn is fading (left side today; right side is almost 2 years ago). I also have coloring now that's more like me. Wishing you well on your journey!

Tuesday, January 13, 2015

2 weeks post reconstruction surgery update

The first week post reconstruction surgery was a blur since most of the time I was given Valium, Percocet and anti nausea meds on four hour intervals so I mostly slept. I was up for daily walks per doctor's orders. I did these before meds wore off.

But because I slept a lot I forgot to drink more water. I wish I set an alarm for this because it meant the first and second week I was -- like post mastectomy -- so heavily constipated. I think, in hindsight, I should have tripled my water intake.
Nothing thereafter helped. I had reached the point of no return. Tried all of these across two weeks without none working:

1. Stool softener
2. Miralax
3. Lots of fiber
4. Lots of water
5. Dulcolax
6. Peri colace
7. Prunes
8. Prune juice
9.  Cocktail of miralax plus dulce lax plus peri colace all at once
10. Lots of chia seeds
11. Colonics
12. Magnesium


And then... my mom, who recently traveled, came and gave me meds her doctor-brother-in-law gave her. It's called sodium picosulfate.

http://www.drugs.com/international/sodium-picosulfate.html

Where did we go after I was more comfortable and less blocked?  Legoland! Thankful for my mom!